Showing posts with label MDA. Show all posts
Showing posts with label MDA. Show all posts

Thursday, August 28, 2008

Clarification

Ok, I've heard ya'll occasionally comment on people that leave anon comments and sometimes they aren't nice. I've never had one of those until lastight. This wasn't per se a mean comment, but it was like they were telling me I didn't know what I was talking about. I did - believe me , I just didn't know an easier way to put what I did.

I'm talking in regards to my comment about the MDA labor day telethon and the fact that my mom and I have CMT ( CHARCOT -MARIE-TOOTH). It is not a FORM of MD, it is a peripheral neuropathy , meaning it only affects lower legs and arms. Is very rarely fatal , yet it is debilitating. The MDA covers over 40 different types of neuromuscular problems , I guess is the right word for it.

Does that explain it a bit better? And just fyi - the little girl who is this years MDA GOod Will Ambassador has CMT - and my braces look pretty much like hers on a larger scale.

Have a great day!
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